1 out of 5 diagnosed with autism is a girl! We promote autism awareness for girls.

Posts tagged ‘autism story book’

Campaign: Day 2

Whew!  Our video is complete and has been added to the campaign.  We may make some slight edits.  Oh well, nothing is ever perfect, right?  Anyway, the campaign is being successfully and enthusiastically shared by many.

Its time to raise autism awareness and some funding for such a great cause.

 

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“C” is for Cookie…and

We took the kids to  Beaches, Sandy Bay resort in Jamaica during the school break.  We go EVERY year.  The resort is small and the staff does an excellent job of handling the kids.  Special needs kids are welcome!   We have not put Kate into camp.  We vacation there for the two small pools and the magnificent, never-too-crowded, pure-glistening-white, sandy beach.  Combined with the turquoise water, it makes for quite a dazling sensory experience.

When we tire from Sandy Bay resort, we take the five minute FREE bus ride to Beaches Negril resort.  It is much larger and can be noisy.  But, NOTHING beats the Lazy River and the Water Slide.  My two girls LOVE it.

As a special treat, we decided to purchase a character “tuck in” for the girls.  Last year we choose Zoey.  She was a BIG hit!  This year we decided to have Cookie Monster come to the room.  Wow!  Pure majic as Cookie Monster entered the room.  You can tell by the smile on Kate’s face.  She really loved it.  She laughed, danced, sang “C” is for Cookie, gave a few high-fives, jumped on the bed, gave out kisses and posed for the camera.

No melt downs.  No hiding during photos.  Just 2 happy girls (plus 2 happy parents).  Isn’t that what the family vacation is all about?

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Imitation

When Kate was a baby, she really enjoyed playing by herself.  She did not engage in games such as Peek-a-boo.  She did not follow my gaze.  Kate learned to make eye contact, respond to her name, and point with the help of Early Intervention.  There were so many skills that come so easily to many children  that she had to work hard at to learn.  Today she discovered another skill!

Kate was eating yogurt this morning for breakfast, while watching a video.  Kate seems to eat more and have less problem with sensory issues when she watches something while she is eating.  I really enjoy the summer because Kate can watch sailboats or watch birds fly by and she often does not need a video to help her eat.  When Kate finished her yogurt she had some on her lips.  I asked Kate to lick her lips.   Kate proceeded to give me an awkward smile.  (Smiling is another issue for another time.)

I said, “Kate, watch mommy.”  I licked my lips and she imitated me!  Fortunately for Kate, once she acquires a skill set she does not lose it.  It was just the first step, but it was a big one.  I decided to try imitation with Kate again.  An hour later I asked Kate to tap her head, touch her nose, put her hands in the air and give me a high-five.  She imitated each step.  Great!  So far 2012 is looking good.

What skill is your child working on in 2012?

Unwritten

Today I am dedicating this song to all those affected by autism and their families.  To those that push the limits, to those that exceed expectations, to those that intuitively know – that to love a person challenged by autism, is to accept them exactly the way they are! Challenged, but not broken…struggling , but not defeated…perfect, just as they are!

Unwritten  – Natasha Bedingfield

I am unwritten, can’t read my mind, I’m undefined
I’m just beginning, the pen’s in my hand, ending unplanned

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your innovations
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
Today is where your book begins
The rest is still unwritten

Oh, oh, oh

I break tradition, sometimes my tries, are outside the lines
We’ve been conditioned to not make mistakes, but I can’t live that way

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your inner visions
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
To the years where your book begins

Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
To the years where your book begins
The rest is still unwritten

Staring at the blank page before you
Open up the dirty window
Let the sun illuminate the words that you could not find

Reaching for something in the distance
So close you can almost taste it
Release your inner visions
Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
To the years where your book begins

Feel the rain on your skin
No one else can feel it for you
Only you can let it in
No one else, no one else
Can speak the words on your lips
Drench yourself in words unspoken
Live your life with arms wide open
To the years where your book begins
The rest is still unwritten
The rest is still unwritten
The rest is still unwritten

Oh, yeah, yeah

No Applause Required

The New Piano

My husband and I have wanted to buy our daughter, Kate a piano for quite some time.  The problem with autism is that it takes up so much time.  Time for special needs class, time to travel to and from class, time for therapy after school, time for special cooking for dinner (feeding issues), huge amounts of time for feeding, time for cajoling any verbal interaction I can get from Kate, bath time, and (whew!) time for bed!  After many many months we finally got that piano.  Kate has been taking music therapy classes for 3 years.  She can play the piano by ear.  One of her blessings and talents is perfect pitch.  So we just knew she would love, love, love a piano in the house.

My mom volunteered to entertain our two young daughters in Kate’s bedroom while the family surprise piano arrived.  The girls shouted with pure delight at their first glimpse of the piano in our living room.  They sat on the bench together and just banged on it for a few minutes.  Wow!  They actually sat and played together!  As awful as the banging sounds, it also sounds like the sweetest music ever played in our home.  Autism has made our family slow down to a crawl and appreciate things that many families miss.  Two young girls banging together on a piano, in sync.  No gentle sweet tones, no melody, no harmony, no pitch, no one to impress….and no applause required.